Physical Treatments & Spread of Condition
Physical Treatments
The wide variation seen in the results above are entirely expected, as in theory GBS is (acute) therefore the majority of people who had this disease have recovered significantly and over a reasonably quick period of time, so once they have left hospital there is little proscribed for them outside. 86% of people with GBS had no physical treatments of the rest; Physiotherapy was provided to 8%.
For CIDP 30% had no treatments and I would have expected this to be lower. 38% of those who responded to this question had Physiotherapy. 24% were given an Exercise Program and 8% Hydrotherapy.
For my own condition, after my initial diagnosis I was in the CIDP/None camp, they seemed to let me go my own way? However after my relapse and re-admission to hospital, I ended up with all three of the above solutions. So my answer would have changed.
As I don't have enough data to correlate to parts of the world, I have not attempted to do so.
The wide variation seen in the results above are entirely expected, as in theory GBS is (acute) therefore the majority of people who had this disease have recovered significantly and over a reasonably quick period of time, so once they have left hospital there is little proscribed for them outside. 86% of people with GBS had no physical treatments of the rest; Physiotherapy was provided to 8%.
For CIDP 30% had no treatments and I would have expected this to be lower. 38% of those who responded to this question had Physiotherapy. 24% were given an Exercise Program and 8% Hydrotherapy.
For my own condition, after my initial diagnosis I was in the CIDP/None camp, they seemed to let me go my own way? However after my relapse and re-admission to hospital, I ended up with all three of the above solutions. So my answer would have changed.
As I don't have enough data to correlate to parts of the world, I have not attempted to do so.
Spread of Condition
As can be seen the spread is primarily inwards (defined by me as from the extremities into the core, so feet and hands first). There is some minor variation between GBS & CIDP, but only around the outwards spread (21 for GBS against 33 for CIDP).
GBS and CIDP are both considered to be symmetrical. This has been borne out with 85% of people responding to the question I asked and maybe quite a few more not knowing what symmetrical was! The right did marginally outscore the left, with 7% and 6% respectively.
As can be seen the spread is primarily inwards (defined by me as from the extremities into the core, so feet and hands first). There is some minor variation between GBS & CIDP, but only around the outwards spread (21 for GBS against 33 for CIDP).
GBS and CIDP are both considered to be symmetrical. This has been borne out with 85% of people responding to the question I asked and maybe quite a few more not knowing what symmetrical was! The right did marginally outscore the left, with 7% and 6% respectively.