Where can you get HSCT Treatment for CIDP?
It seems apart from, five listed below no other clinics are performing any HSCT procedures for curing CIDP (as of 21/06/2014):
Clinics do treat other conditions (e.g. MS, Lukemia & Cancer) with HSCT; there are some great stories about the recoveries and don't forget that the actual treatment has been known about for over 30 years.
The rest of the (known) World is holding it's collective breath and waiting for the trials in Northwestern to be approved - this is where the comments about Big Pharma not wanting a cure; cloud the issue and I have to agree that 11 years is a long time when other drugs/treatments are approved in 18 months.
It seems that no insurance company will pay for the HSCT treatment for CIDP (again waiting as above) however they do for other conditions. What people are doing is raising/getting the money individually to get to Moscow to get treated - this is especially happening from the US.
Currently Pirogov can only handle 87 patients a year and newer/better facilities are being opened there as I write. I don't know how this will impact the number of patients they can deal with.
The latest news out of Pirogov is there is now an 18-24 month waiting list.
- In the US (Northwestern) where Dr Burt is attempting to jump through the FDA hoops (and has been for 11 years!) at stage III.
- In Israel (Tel-Aviv) CITI - Prof Shirman Slavin (which seems more focused on cancer but does state auto-immune diseases)
- In Canada (Ottawa) - where there have been a small number of HSCT treatments (59) for numerous autoimmune diseases (including 2 for CIDP) over the past 20 years, however they do not seem to advertise the fact
- In Russia (Moscow) the National Pirogov Medical Surgical Center under Dr. Denis Fedorenko, this is where people I know have gone for treatment
- In Beijiing China - China Stem Cells Medical Centre - this is a recent addition, so there are no confirmed cases of CIDP that have been treated here
Clinics do treat other conditions (e.g. MS, Lukemia & Cancer) with HSCT; there are some great stories about the recoveries and don't forget that the actual treatment has been known about for over 30 years.
The rest of the (known) World is holding it's collective breath and waiting for the trials in Northwestern to be approved - this is where the comments about Big Pharma not wanting a cure; cloud the issue and I have to agree that 11 years is a long time when other drugs/treatments are approved in 18 months.
It seems that no insurance company will pay for the HSCT treatment for CIDP (again waiting as above) however they do for other conditions. What people are doing is raising/getting the money individually to get to Moscow to get treated - this is especially happening from the US.
Currently Pirogov can only handle 87 patients a year and newer/better facilities are being opened there as I write. I don't know how this will impact the number of patients they can deal with.
The latest news out of Pirogov is there is now an 18-24 month waiting list.