Research into GBS & CIDP
This section contains facts and medical opinion that I have come across during my research into GBS & CIDP. I have taken these pages from a wide range of sources and will attempt to give due credit where I can. I have decrypted as much of the medical jargon as I can to make it readable to normal people and may have "lost" some of the meanings in translation. Hopefully what I have gleaned is of use to others.
The PDF on the right is from the GBS-CIDP Foundation International in the US (10th edition by Joel S. Steinberg & Carol Lee Koski) and is a comprehensive laymans guide to what GBS, CIDP and some of the other variants are.
I only found it by accident - it is an excellent read. |
By the way; my survey does disagree with some of their statements.
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Also learnt about an excellent research library, where if you want to know about certain illnesses and what works/doesn't from medical/clinical studies, they correlate all the worthwhile trials into one place and it is free (to us in the UK):
Go to: http://www.thecochranelibrary.com/ or press the button above.
If you want to know about GBS or CIDP research just search on those terms. The group have been granted some money for collating the results and turning them into laymans language, that means understandable to you and me!, by the GBSSG (well that's the theory)
Go to: http://www.thecochranelibrary.com/ or press the button above.
If you want to know about GBS or CIDP research just search on those terms. The group have been granted some money for collating the results and turning them into laymans language, that means understandable to you and me!, by the GBSSG (well that's the theory)
This diagram I found on a US web site (March 2012), from a presentation and it clearly depicts the view of the medical profession between the time spans for GBS & CIDP.
I do not like the look of the line for CIDP! This shows the disability for someone with GBS peaking at around 4 weeks and then going back to normal and the disability for CIDP gradually rising and never coming down! |
This diagram is my revised version of their time spans.
My first change is that GBS does not get back to normal in a certain amount of cases. It seems to get close and plenty of people can lead normal lives, but there are residual effects. My other change is that CIDP does improve. Bear in mind my figures are based on my survey and I am probably being pessimistic - as it is much more likely that people still suffering from GBS or CIDP filled in the survey than those who are now better. |