Survey into GBS & CIDP
As I worked with IT and knew a bit about the web. I thought I would start a survey from a patients eye view on GBS & CIDP, to see what could be gleaned from other people about their experiences.
I had looked on-line to see what others were doing and though there was something being thought of, but nothing existed from the patients viewpoint. In order to ensure I had rights to the information I had to pay for the survey to be run (as if you use free ones the information gathered can be disseminated to anyone the survey company decides to). |
I started this project in February 2012 and quickly came up with 36 questions that I thought were not leading and would provide useful insight to sufferers throughout the world. Having sought assistance from official bodies and been refused; I did it myself.
The survey ran from March 2012 to March 2013. If I thought it would receive more answers I would re-open it, but again would have to pay for this and as none of the organisations would (or in their words could) sanction this "unofficial" survey.... Use the link below to open a PDF showing the questions asked in the survey (2012 - 1st edition by Drew Markham!):
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The buttons below link to the individual pages from my survey (or use the tabs at the top of the page):